Back at home update #prayingforcolby #dystonia

August 28, 2010 · 17 comments

Colby is very excited to be home. He is doing great, there isn’t a lot of swelling and he’s pretty happy. He’s a bit clingy but I can’t blame him for that. I’m just holding him a ton and snuggling my brave boy.

 His grin was so huge when I told him we were leaving the hospital. I had the nurse give him some medicine before we left so he would sleep on the way home. I know some people might think that is bad but it’s a two hour drive and he just had brain surgery. I think he was entitled to a nap even if it was a drug induced one. No sense in him being uncomfortable.

I was a little late with the picture but he really was smiling when I started to take his picture. The drugs were kicking in and he was fading pretty fast.

 I have a couple pictures of his incisions but I’m tired and my admin page keeps crashing so I might have to try and post those tomorrow.  If I can make it work in the next few minutes I’ll include them. If you don’t like to see stitches it’s probably a good idea to stop reading.

 There is a lot of dried blood on his head around the stitches. Heads bleed a lot in case you didn’t know that. Plus there is a bunch of adhesive type stuff that’s a dark yellow. I still can’t get that off. Colby is quite happy that he can’t have a bath for 14 days. He laughed at me when I told him he is going to be a stinky boy.

The blood and adhesive will eventually wear off but the stitches are disolvable so I can’t use adhesive remover or more than a slightly damp rag on his head. The doctor actually said to just leave it alone it would come off in time.

Now that I’ve repeated myself three times I think I’ll stop typing and head to bed. Hopefully it will all make sense in the morning. The first picture is across the top of his head. The second is still in the PICU about 4 hours after he got out of surgery. He needed oxygen for about 24 hours after he was done. Pretty normal for him. The third picture is the next day in the NTU. He is my hero!

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{ 17 comments… read them below or add one }

1 Katie @ The Kouture Mommy August 28, 2010 at 10:17 pm

Aw, he’s a brave boy! I had a c-section and I think they used that same adhesive…it stuck for weeks! The doctor told me the same thing, to leave it alone and it would fall off. It mad me think I had an infection and it freaked me out!

I’ll be praying for a speedy recovery so he can climb trees, making mud pies, and playing with bugs! :)
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2 The Activity Mom August 28, 2010 at 10:18 pm

Welcome home! =)

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3 Liz Yost August 28, 2010 at 10:22 pm

There is something about this post that is so beautiful. Your little boy is so precious! His pictures are so gorgeous! Yes, even those with blood because that scar bring such hope! My little boy was diagnosed with leukemia the day before his second birthday and we have now completed two years of treatment and have one more to go. Our journeys are very different and yet similar, I feel such a connection with you as I read about your journey. Our boys are such heros and I am so thankful that God is faithful. As far as what people think about you giving him meds to sleep, all I can say is that I have done many things very differently that I thought I would and I have come to realize that is ok because I never thought I would have a toddler on chemo so if he needs some Sprite to help ease the pain of taking chemo pills then so be it! Much love and hugs!

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4 Amundsenchaos August 29, 2010 at 10:28 am

Thanks Liz! It\’s so true how much things change after you go through a major life change. I do things daily that I swore I would never do. Sometimes just in an effort to maintain my sanity or keep the house peaceful. I hope that things are going well with your son and that he can kick it. Chemo is no fun. When Colby was in the PICU immediately after his stroke I\’d see the families headed to the 4th floor (They call it the cancer floor) and think to myself how hard that would be. Then I\’d chuckle because I had a kid in the PICU on life support. Ironic how things can be perceived in the middle of a trial. You are right our boys are hero\’s and I know I am blessed to be Colby\’s mom!

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5 Annette August 28, 2010 at 10:23 pm

Yay! Brave boy! I’m so glad you’re home.
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6 Gail August 28, 2010 at 10:37 pm

YAY!

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7 Cheri August 28, 2010 at 10:40 pm

Aw Erin, You must be one exhausted moma. What a sweet brave boy you have there. I hope for a speedy recovery for you all. Take care. ~C
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8 Amundsenchaos August 29, 2010 at 10:30 am

Thanks! He is pretty brave. I\’m one proud mama of my trooper!

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9 Doreen R August 29, 2010 at 7:58 am

I’m glad all went well. I will be praying for his recovery and for rest for the rest of the family……DONE…I prayed that God would cover your family with a great big blanket of comfort and healing. :)

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10 Amundsenchaos August 29, 2010 at 10:30 am

Thank you we have definitely felt the comfort and support of all the prayers we have received.

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11 Nicole August 29, 2010 at 9:09 am

I’m so glad he is home! Praying for a speedy recovery :)

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12 Amundsenchaos August 29, 2010 at 10:29 am

Thank you!

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13 Cheryl August 29, 2010 at 9:37 am

So good to see him smiling! Those stitches are hard core. I hope this surgery brings all the relief you have hoped for. Colby surely deserves it!
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14 Amundsenchaos August 29, 2010 at 10:29 am

Hard core stitches for a hard core little boy! His dad called him scar head yesterday and he laughed. Isn\’t there some country song about chicks digging scars. This boy is going to have girlfriends lining up for him if that\’s the case!

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15 chelleigh August 29, 2010 at 11:16 am

So happy to hear that post!!!!Colby looks like he is doing very well!!!He is such a trooper!!(I wrote this then just read the eariler posts to make sure i didn’t seem like such a….silly person……or..what ever!…(you can fill in the blank?…and then i read that you called him a trooper too!!!!…so we both agree that he is a mighty fine trooper!!!!!!!!)

Good for you on being an advocate for your son for premedicating for the drive home!!!!That can be a miserable thing for a brain injury for the movement of and to home in the car. And the little guys don’t like it, it is much better to wake up at home!!!Hope that you both get some sleep. Continued prayers for you and your family!

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16 Teresa McGuire August 29, 2010 at 9:27 pm

Hi Amundsen Family! We are new to your site and found you through a friend of ours on Facebook. We have been praying for Colby and your whole family. How exciting to watch as prayers are being answered. God has been gracious. I see that your husband, John, is in the Army. We are Army parents. Your family gets double prayers! Looking forward to watching Colby’s progress. Thank you for sharing his story. What a fighter!

Teresa

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17 Amanda August 30, 2010 at 8:48 pm

Erin,

I am so glad everything went well and your sweet baby boy is doing OK. You guys are in our prayers!

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