Eight years is a long time.
Eight years and one day ago I did not know kids could have strokes.
Eight years and one day ago I did not know how strong Colby was.
Eight years and one day ago I thought I knew what love was.
Eight years and one day ago I had no idea what the word survivor meant.
Eight years ago Colby showed us what survivor means.
Eight years ago I learned it was possible to have your heart break and keep beating.
Eight years ago Colby decided to stay here with us.
We’ve all learned a lot in the last eight years, more than I could ever put into one blog post. Sometime during the last year things became normal again. We bought a house and moved. Colby has settled into his routine. We’ve settled in and turned a house into our home. Things have become easier for the moment. Seizures aren’t as scary anymore. Colby’s heart rate has improved thanks to more frequent lab work. We’ve tried new formula and medicines. We scrapped the old ones. Colby showed us that he really didn’t need one of his antidepressants by raging for almost two weeks straight. He didn’t sleep for three days after that med increase. I figured once he got the extra worked out of his system he’d go back to his regular dose, that was three months ago. A slight increase in his seizure med has helped with his mood stability. Good thing it works on both issues for him. He got a new diagnosis, a new specialist and we found out his aorta is a little enlarged but not as enlarged as we were first told.
Colby has grown a lot and gained a little bit of weight. It’s harder to hold him on my lap and there have been times this last year I’ve had to tell him I can’t hold him anymore because my back hurts to much. As much as I didn’t want to do it, I called and got a quote on a ceiling lift. Today I gave the quote to Colby’s doctor to submit to insurance. Hopefully they will approve it.
Looking back over my past Survivor Day posts I think it’s fair to say Colby and our entire family has come a long way. In case you’d like to see here are years 2 through 7.
Happy Survivor Day buddy, we love you!