Colby really does not want to go back to school! I on the other hand was so excited for him to go back tomorrow. Guess who is going to win tomorrow? The 103.1 fever does. Sigh. He hasn’t been to school since Dec 18th. One entire month! I know two weeks of that was vacation but this is getting ridiculous.
He has an ear infection. Ear infections do not cause 103.1 fevers. His blood work today shows anemia. Anemia does not cause 103.1 fevers. His urinalysis shows nothing. Nothing does not cause 103.1 fevers. Can anyone tell me what would cause a 103.1 fever? His doctor doesn’t know. Oh that ear infection is after a ten day course of antibiotic he finished yesterday. Doesn’t make any sense.
Tomorrow I will call his kidney doctor to have him look over his lab work. The protein in his urine has gone up again but his kidney panel labs look better. Go figure. Then I’ll call his neurologist to ask about a link between lamictal and not absorbing folate or something. I was talking with other parents about the link on a Facebook group over the weekend. She brought up testing for the MTHFR mutation. I asked his pediatrician about it today but he doesn’t think there is a reason to test for it yet. Frustrating!
I feel bad for Colby but he continues to be a trooper. Today at the lab he laughed when I asked him if I should pretend my arm was his arm to trick them. He screams in pain from stomach cramps after being on an antibiotic and when it is over he laughs. Almost like he’s saying “HA HA I worked through that you stupid cramp!” I took his temperature and said “Stupid fever, go away” He laughed. He felt miserable but he still laughs and smiles. He is the toughest person I know. Not just tough physically because he tolerates so much pain but emotionally tough as well. He could give up, but he doesn’t.
This week I was so anxious for him to go back to school. I’m tired, I felt like I needed a break. He’s been up five to eight times a night and instead of sleeping until sevenish in the morning he’s been up at 5:15 every day the last two weeks. The thing I have to remind myself is I can take a break if I have to but Colby doesn’t get that option. His body doesn’t give him a break ever unless I medicate him enough for him to get some relief by forcing him to take a nap. I hate doing that. I hate seeing him in pain. There’s not really a win in either situation so I try and balance it for him as best I can. So tonight I’m pulling it back together and we’ll get through another week of no school if that’s what Colby needs. I’m hoping tomorrow one of his doctors might have some more answers for us.