This is how my Wednesday night went
It’s kind of how Sunday night went also. The last two weeks have pretty much been the same just at home and not in the ER. 101.5 to 102.9 fevers every day for two weeks with no clear answer. At first I felt like it was pneumonia but was told his lungs sounded great. So then I started second guessing myself and trying to figure out what else it could be.
He’s done this once before with one of his seizure meds so I decreased that a little bit. No seizures and for one whole day he was fever free. Tricky boy! Then it shot back up and stayed put.
Thursday the pediatrician asked the radiologist to read the film and it says Extensive Left Sided Pneumonia. So much for the ER doctor and the Respiratory guy reading the film and saying he looked fine the night before. Oh well, it’s figured out for now. He’s on an antibiotic and feeling better though he is grumpy today because he had a seizure this morning. I’m not ready to go back up on his seizure med right now so I’m just going to wait and see what he does for now.
The dumb thing about this pneumonia is that I think he aspirated during his pH study and that’s what caused this. I knew I didn’t want to do the study but it had to be done in order to go forward with the fundoplication nissen surgery. The study that was supposed to show how bad he refluxes. The study that showed he only refluxed fifteen times total in 24 hours which is well below normal. Yeah, that study. We’re meeting with a surgeon because even though the study didn’t show bad reflux he still throws up. His teeth are horrific. His gums are constantly inflamed and his esophagus is always bleeding. No matter how much I brush his teeth they will eventually fall apart with that much stomach acid covering them every day.
I’m really hoping this will help but we probably won’t do surgery until next year. Until then we’ll keep managing the throwing up the best we can. It’s not like he just started this, it’s been five years of daily vomiting. It would be nice to not have to cart around a backpack full of washcloths and changes of clothes.