Today is the day.
Colby will be receiving 8 electrodes implanted into his brain and an implanted pulse generator into his stomach with a wire tunneling under his skin from his brain down to the stomach.
Adults get the IPG in their chest like a heart pacemaker but the risk of infection is greater for kids, so they put it in his stomach.
Just like his baclofen pump. That he doesn’t have anymore.
The IPG will go on the opposite side of where they originally placed his baclofen pump.
It’s a good thing chicks dig scars right? Cause this kid has plenty of them.
All kidding aside, we’re asking for help. To be specific we’d like prayers. Lots and lots of prayers.
If you don’t pray, then good thoughts and vibrations work just as well.
We need Colby to handle the surgery well, for the doctors hands to be steady and precise, for everything to be sterile so there will be no infections(that’s why he doesn’t have the baclofen pump), that his muscle spasms will go away and that he will be able to use his arms and hands. If you really believe in miracles would you mind asking if it could help him regain his speech? That would be such a miracle.
One more request. Through all of this my goal has been to raise awareness of childhood stroke and dystonia. There are more kids than you can even imagine that have had strokes. If you could pass on Colby’s button over there on the right, and ask your readers and your tweeps to pray as well we’d sure appreciate that. If you tweet it we’re using the hashtag #prayersforcolby and #dystonia.
I will try and update as possible, it will probably come through on Twitter first because it updates my IRL friends and family on facebook. That way I don’t have to make 45 different phone calls. Plus the hospital is weird. I have service in some rooms and can’t text and dont’ have service in others and can text. So depending on where we are in the building I will update here after he is comfortable and sleeping.
Thank you!
{ 14 comments… read them below or add one }
Hi just read your story and sobbed. I can’t image. I am so sorry you are going through this, and that he is going through this. But you are an inspiration. Your family is in my prayers today.
Heather
I hope Colby’s procedure is successful and he’s on the path to recovery soon.
Just wanted to say my prayers are with you and your family…..
Sending many prayers to Colby!
Hi! I’m new to your blog today. My friend posted your link on facebook and I just wanted to tell you that I just did the same! I have lots of amazing friends that will pray for you and your sweet little boy. You will be in my thoughts and prayers today. God Bless You!
Prayers to you and Colby
Prayers for Colby–including speech–definitely! I’ll be watching Twitter for updates.
Annette´s last [type] ..NOT an Anne Freak
Your family is in our family’s prayers today especially.
Educating myself about basal ganglia procedures and thinking LOTS about you and Colby.
You are both super heroes.
Ofthesea´s last [type] ..Reason 74 – My son begs strangers for food
Thinking of y’all today and sending happy thoughts, good prayers and lots of blessings – love your writing, and your strength of spirit clearly comes thro!
By Word of Mouth´s last [type] ..The Princess- the Philanthropist
Thinking good thoughts and sending good juju your way today. HUGS
Sending good thoughts your way, today and always.
Erin, I so believe in miracles. I do know the Lord truly loves you and knows what a good parent you are to hand this trial over to you. I will pray that Colby will be able to use his hands and arms and that his speech will come back. You are awesome and I love you.
Karen
You have my love and prayers! God bless Colby!