Final Surgery Update #prayingforcolby #dystonia

Colby is done and waking up in recovery. Well, he’s really still sleeping and they will come get me when he wakes up.

He did wonderful. No problems. A little bit of air got in where his stroke damage is but they said that isn’t unusual and won’t cause a problem so nothing to worry about.

They went with a single generator in his stomach instead of two. I’m so happy about that. It’s hard enough to recover from one abdominal incision so I was hoping for one.

They turned it on in surgery and his eye twitched and his fingers curled which are adverse reactions but that’s good. They ramped it up way higher than he would ever be at so that was the reaction they wanted.

They might turn it on in a couple days, we will just have to wait and see how he does.

Both the neurosurgeon and the neurologist said they were pleasantly surprised at how well it went given the challenges Colby presented. Smaller brain, different sides of the brain and the damage isn’t exactly the same on each side, the area between the damaged area and the area it was placed is very thin were some of the more difficult aspects of the surgery.

I cannot thank all of you enough that prayed and sent good thoughts  for Colby. If you’d like to keep praying for him and a speedy recovery we’d appreciate that too. I’ll update a bit later when he’s settled and happy. It might be tomorrow before I can do it though.

I’m exhausted. I didn’t get to sleep until midnight and was up at 3:15 to drive down here. John never did fall asleep. I think having a kid go through surgery is a little like labor. You forget all the bad parts after it happens until your back in the middle of it. I’m so thankful that we were able to receive so much support from everyone. You’ll never know how much it means to us because I can’t possibly express it in words.

Tagged as: Colby, Deep Brain Stimulation, Dystonia