To crazy! We were in the newspaper on Saturday. If you want to read it, you can go to LDS Church News to read it. If you aren’t familiar with The Church of Jesus Christ of Latter Day Saints you can go to LDS.org to learn more. It might seem weird to see them say Sister or Brother Amundsen if you didn’t know that’s what religion we belong to. Just to clarify in the article it says Jahnna has ADHD, ODD and is Bi-Polar. She is only Bi-Polar. I don’t think I did a good job of explaining the whole story. At various points she has been diagnosed ADHD or ODD but only until she had her first manic episode at age 6. That is when she was finally diagnosed as Bi-Polar.
Also as an MRI update we still don’t have results. We go see the neuro oncologist on Friday so I’m hoping by then we will have heard something or that he will have the results then. This MRI was actually ordered by the neuro surgeon at the original office we went to. It’s a whole complicated confusing system since he is being followed by two different teams at this point. They are sharing information though so that’s why I’m hoping we’ll know by Friday.
We did get back his first blood work results this morning and those numbers looked great. It means he is good to go for round # 2 of Chemo starting Sunday night. This will be his first full dose of the treatment and he is not looking forward to it. Half strength has already made him so tired. It’s also playing with his immune system. Right now he has the hugest cold sore I’ve ever seen on his chin. He hasn’t had a cold sore in over two years. We’ve been putting some cream stuff on it for three days. You know the kind that’s $20 for a teeny tiny tube and is supposed to clear it up in 24 hours. It isn’t helping. Also his ingrown toenail that he had fixed right before starting the first round hasn’t completely healed yet either. It’s frustrating to him since he always healed fairly quickly before this.
Colby and I got our teeth cleaned today. Colby did really well considering his teeth are awful! Well, his gums are awful. They bleed all the time. The dentist wants to see him every 4 months instead of 6 months. His back teeth are completely ground down smooth so he wants to hold off on capping them until we absolutely need to. I’m good with that. He wants to put a sealant on twelve of my teeth. I’ve been grinding my teeth the last year (stress, much?) and I’m starting to have the beginnings of some cavities where I’ve cracked my teeth. Good times.
I’m really hoping that John’s truck gets fixed this Thursday. That’s the plan for now anyway. Then I’ll be able to fit everyone in the truck at once.
That’s about it for now. As soon as I hear about the MRI I’ll post an update. Thanks for all the prayers and support. I draw strength from knowing they are being said.
{ 4 comments… read them below or add one }
Hoping for good news for you.
Hi
My name is Jenna and I came across your site. Your kids are courageous, strong and determined fighters. They are brave warriors, smilen champ’s and inspirtational hero’s. I was born with a rare life threatening disease, 12 other diagnosis, bipolar and so on. I love it when people sign my guestbook. http://www.miraclechamp.webs.com
Just read the article, it was great. It made me cry as I just cannot even imagine and am amazed at how you stay so strong and positive.
Amazing article. Amazing family. I will be praying for you and knowing that with your courage and faith, miracles will happen for you all.